Video Camera Monitor

Any tips or Information about coping with my 1year old’s Epilepsy?

My son is just turning 1 on the 25th of August and has had 4 seizures since the end of May. He is now on Keppra and has been taking that for about 3weeks. He hasn’t had a seizure since he has been on his meds but I am still scared to death. I can’t leave him alone, if he starts crying I immediately pick him up to try and stop him, I am scared to give him baths, and I have him on a video camera monitor while he sleeps. Its driving me crazy any answers or suggestions would help.

P.S.
He doesn’t have convulsions during his seizures he stops breathing, turns blue and goes limp from 30seconds up to 3mins so far. So it is very scary because he looks dead.

I know how scary this can be. I used to pick up a little girl on the ambulance from the time she was born until she was two – until the family relocated. It is very hard not to become over protective or what some my interpret as smothering. You should see if there are any support groups in your area. Talking to other parents who know how it is to have a child with the same condition may help. It always helps to know you are not alone.

After he has a seizure he is, what is called postical. This is why he goes limp etc. Everyone will experience this after a seizure. Always talk to him and touch him – although some doctors will tell you differently, I believe it helps to let them know you are near.

Also look on webmd. They have several support groups there. Good luck and God Bless.

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